Hours would go by, then he’d suddenly find a wallet, or a shoe, or a bone, that could identify another casualty.Opiola’s office building at Six World Trade Center had been sliced in half by antennae from the fallen North Tower, but his office itself still stood—he could even see his wedding photo on his desk.Seven World Trade Center had yet to collapse when Opiola arrived on September 11—it didn’t fall until that evening—and officials worried other buildings might fall too. Every so often a horn would sound, and responders would go sprinting through the dust to get to safety.“Guys would be flying at you because they thought these buildings were still going to collapse,” Opiola said.He was tasked with removing what evidence, guns, and drugs he could recover from the surviving Customs vaults, and worked to make sure all his co-workers were safe. Some were in such shock that they didn’t respond to knocks for days, then would suddenly answer their door still covered in soot and dust.After the initial search-and-recovery efforts waned, Opiola moved over to Staten Island, where a dump had been repurposed into a football field-sized grid where he and others searched for remains.Within weeks, he had what’s known by first responders as the World Trade Center cough. “The cough was brutal and the cough was producing just black stuff,” he said.“You would look at these suits for four thousand dollars, and we're bringing in things in buckets which we think may be human remains.”
The latest on the list is rheumatoid arthritis, which makes it harder to walk and leaves him in constant pain. He sees nine different doctors through the healthcare program to manage his chronic issues.“I wake up in pain and I go to sleep in pain,” he said. “It’s become a way of life.”A week after the 9/11 attacks, Environmental Protection Agency administrator Christine Todd Whitman put out a statement telling New Yorkers “their air is safe to breathe and their water is safe to drink.” A few days earlier, she’d told reporters that “The good news continues to be that air samples we have taken have all been at levels that cause us no concern.”New York City Mayor Rudy Giuliani insisted that Ground Zero remained under city control, and while PPE was provided the city never required masks onsite. Giuliani, like President George W. Bush, toured the site without masks, setting an example. Wall Street reopened for trading less than a week after the attacks. Local businesses were encouraged to return. Stuyvesant High School, just blocks away, reopened a month later.His health kept deteriorating. Severe night sweats, fever and chills kept him from sleeping. Fatigue overtook him. Doctors found nodules on his lungs.
When the healthcare program was extended that year, it had enrolled 75,000 people. In the six years since, another 36,000 first responders and survivors from the neighborhoods surrounding Ground Zero have joined, leaving the program at 112,000 people, including 65,000 with a 9/11-related condition and another 50,000 who aren’t sick yet but are being monitored in case any diseases develop. Even those who led the original push to create the programs had no idea how many people would need them.Chevat was chief of staff for New York Democratic Rep. Carolyn Maloney when she introduced the first 9/11 survivor bill in 2004, helped run her effort to push the bill into law in 2010, and led the lobbying charge for its renewal in 2015.“I don’t think we fully understood the scale of this. I don’t think anyone could really have envisioned the scale of this,” he said. “Had there been acknowledgement of this [by the federal government] and the work been done we would have better understood the scale.”Chevat, Opiola and other advocates are now bracing for another battle. While the World Trade Center Health Program was reauthorized for the foreseeable future in 2015, it’s currently facing a potential funding shortfall of $2.8 billion in the coming years. That’s both because the rising cost of healthcare has outpaced predictions, and because so many more people have needed the program in recent years. The bill has wide bipartisan support, from New York Republican Rep. Elise Stefanik to New York Democrat Alexandria Ocasio-Cortez, and isn’t expected to be nearly as heavy a lift as the original fights, and House Democrats are pushing to include it in their $3.5 trillion budget bill. But sick and wounded responders shouldn’t have to fight at all.“I don’t think we fully understood the scale of this. I don’t think anyone could really have envisioned the scale of this.”
“It hurts me that I have to tell him that I can't throw the ball today. I can't run, because I can't breathe,” he said. Opiola has only been back to Ground Zero once since it reopened to the public. He hates the Freedom Tower, calling it a “ridiculous building,” and is furious that they forced the U.S. Customs office back into the building when it was opened. The museum also bothers him.“It should be a park, a burial ground,” he said. “That should have been a graveyard from the get-go.”Just being there was difficult.“It was emotional and I couldn't wait to get out. I couldn't wait to get home,” he said. “Maybe a lot of stuff I haven't sorted through in my own head.”Still, he feels comparatively lucky. Five colleagues he worked closely with have died from diseases since the attacks. Many other first responders he knew have died as well.“We're coming close to the 20th anniversary, and I'm getting these invitations to go to these memorials for the guys that aren't here anymore,” he said. “So I'm blessed. I really am.”“These people went in, especially the first responders, to save people. And now they have illnesses and they're dying from them and it's not stopping.”