The rollout for the COVID-19 vaccine is in full swing across the United States, but access to it has varied widely between states, counties, and even clinics. Figuring out how and where to get the vaccine is still confusing, and the official websites to sign up are often terrible, overloaded, broken, or confusing. Volunteer-run digital resources are filling in the gaps.
Across the country, people are turning to volunteer run and DIY resources in order to find appointments for the COVID-19 vaccine. There are now hundreds of websites, Twitter accounts, Facebook groups, Slack channels, and bots dedicated to helping people sign up to get the vax, most of which are focused on a specific state or geographic area.
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Ben Cohen, who helped build the site Covid Vaccine Texts, which sends you a text message when there’s an available appointment to be vaccinated in your area, told Motherboard that he built the system after having trouble finding an appointment to vaccinate his mother. It wasn’t until the site launched that he saw how much it was needed.
“We launched at 11 p.m. one night and woke up to a few hundred signups and a few dozen feature requests and thank you emails by the next morning, which really solidified the picture that folks needed more resources to feel in control,” Cohen said.
“The rollout is a form of The Hunger Games online, and folks who should be at the front of the line don’t have the tools to play.”
Although each state has its own guidelines for vaccination and its own ways of communicating that information to the public, Cohen said that from his perspective, one of the great difficulties is simply making an appointment. In most parts of the country, there’s no way to call a doctor or vaccine site to be put on a waiting list. If you’re not tech-savvy, or don’t speak English, or do shift or gig work in a restaurant, rideshare, grocery store, construction site, or other job where you can’t be in front of a computer at all hours, trying to make an appointment at all can be extremely frustrating.
“We tried to make our website as user friendly as possible, but even navigating our form and following up on appointment notices is hard for some folks for various reasons, and these tend to be the ones who need shots most,” Cohen said. “We’ve got a number of people signed up for our site who are doing so on behalf of others (largely teachers and older folks) in their community, which is awesome, and something I think we need more of.”
Katherine Profeta from West Brooklyn Mutual Aid, who have recently started helping people in their area make appointments for the vaccine, also said that while great websites and tech tools are helpful, they don’t always make it to the people who need it most. Some mutual aid organizations have volunteers dedicated to making appointments for people who can’t, and have set up third-party systems for making appointments in ways that are more familiar to the elderly (by setting up phone lines to call). They also focus on getting information out to people who just don’t know what to Google for.
“About 2 weeks ago we launched this effort (thanks in large part to the efforts of a woman named Rachel Moldauer). Our dispatchers started asking all callers, who call us for other reasons, whether they were eligible for a vaccine and would be interested in help with booking an appointment,” Profeta said. During this soft launch of the program, they’ve been able to book ten appointments. As West Brooklyn Mutual Aid tries to expand their outreach, they’re hoping to increase the volume of appointments they can make.
If you understand the system, helping other people navigate it at this point is invaluable.
Profeta, Cohen, and newsletter-turned-vaccination effort Epicenter-NYC told Motherboard that the most vulnerable populations aren’t getting the information they need.
“New York is better than many states, but I don’t think that’s saying a lot. The main problem with the rollout is that it is a form of The Hunger Games online and the folks who should be at the front of the line, elderly and essential workers, don’t have the tools or digital savvy to play,” S. Mitra Kalita from Epicenter-NYC said. “The state needs to talk to people in terms that are concrete and accessible—there’s so much confusion within the categories. Again, to circumvent the system, you must know the system.”
While many volunteers have created their own websites or Twitter accounts, like the popular Turbo Vax or state specific resources like NYC Vaccine List, that’s not the most helpful option for everyone. That said, if you do understand the system, helping other people navigate it at this point is invaluable.
“All the people who posted and shared tips and tricks for how to see cancellations come up, did it as volunteers,” Profeta said. “All the people who learned how to book appointments when struggling to do so for their grandparents or parents, and then thought ‘hmmm now I have a hard-earned skill I should share with others (a frequent narrative),’ did it as volunteers.”
In an attempt to connect as many people as possible with these resources, Motherboard is attempting to compile a list of volunteer or nonprofit vaccine resource centers. This list is non-exhaustive and we have not been able to test every single one. Some of them may be projects that were started and abandoned, for example. But we hope some of these may help you with your quest to get a vaccine appointment for yourself or a loved one.
We have tried to group them by geographic area. If there are any resources that should be added please email us at gita.jackson@vice.com.
National:
Helps track available vaccines in your local pharmacies
Texts you when an appointment is available in your area
Nationwide finder for RiteAid, Walgreens and CVS
A list of state-by-state vaccine resources
VacFind’s Discord server, to help them crowdsource resources
Standby list for leftover vaccines
California:
Volunteer run Twitter account for vaccine appointments and news
San Francisco Immunization Coalition
Community health organization in the Bay Area with resources on how to get a vaccine
Colorado:
Twitter bot that tweets out available appointments for vaccination
Connecticut:
New York/Connecticut Vaccine Hunters & Angels
Facebook group for people looking for appointments for vaccination
Florida:
Facebook group for a mutual aid organization that is helping people schedule appointments
Lousiana:
Twitter bot that announces available appointments in Louisiana
Maryland:
Large, active Facebook group for locating and appointments and asking for help
Massachusetts:
Open source application for scraping information related to vaccination appointments from pharmacy sites, originally created for Massachusetts
Website to locate appointments for vaccination
Minnesota:
Facebook Group for people looking for the vaccine
Missouri:
Website that lists available appointments in the Kansas City metro area, as well as vaccine information
Twitter bot that tweets out available appointments
New Jersey:
Twitter bot that tweets out locations with available appointments in New Jersey
Volunteer run Twitter account that tweets out available appointments and vaccine news
New Jersey Covid Vaccine Sites Facebook group
Facebook group for people looking for available vaccines and appointment
New York:
Appointment finder for the New York City area
Mutual aid group helping people schedule vaccine appointments
West Brooklyn Waterfront Mutual Aid
Mutual aid group helping people schedule vaccine appointments
Twitter account that tweets out pharmacies and other locations with open appointments
Popular New York City area tool for finding open appointments for vaccinations
North Carolina:
University of North Carolina’s vaccine portal, which creates new appointment slots every weekday.
Duke allows you to sign up for a waitlist which will email you when an appointment is available.
Oklahoma:
Twitter bot that tweets out available appointments
Pennsylvania:
A team of volunteers calling pharmacies and hospitals for vaccination availability.
Texas:
Everything people in Austin should know about the vaccine, all in a handy spreadsheet
Slack group for statewide updates on the vaccine
Website that tracks vaccine appointments at H-E-B
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