A series in which people across the U.S. offer firsthand perspectives about how social issues impact their real lives.
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Service workers, gig workers, and hourly employees are left with a choice: Go to work and endanger yourself and others, or stay home and make no money. This choice becomes especially difficult for people who care for elderly or immunocompromised people either at home or at work. VICE asked nine workers who live with or care for elderly and/or immunocompromised people about their jobs, precautionary measures, and their ability to take time off.Interviews have been edited for length and clarity. Some last names have been omitted for privacy.
Allie Kiekhofer, 28, Los Angeles, CA
During the day, I used to work at an elementary charter school as a one-on-one behavior aide until March 12th when our school closed as a precaution for COVID-19. They guaranteed pay for salary and hourly workers for at least two weeks, which is the current length of the closure.On some weekends and days after my school job, I've worked (and continue to work) as an in-home personal care attendant (PCA) for a 25-year-old woman who has spinal muscular atrophy. I’m not an expert on SMA, but I know that she has very limited respiratory function. Just eating certain foods can give her a really bad cough. She also has a catheter, which I believe makes her immunosuppressed. I’m obviously also not an expert on COVID-19 and how it interacts with SMA, but I do know that it takes root in the lower respiratory system and disproportionately affects people who are immunosuppressed. I’m 28 with no underlying conditions—if I get sick, it will probably manifest as a cold. But if she gets sick, we both know it could be fatal.
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I’ve been especially worried about bringing germs into her home. When school was still in session, I usually drove home, changed my clothes, and washed my face, hands, and upper arms or took a full shower, if I had time. I was about as careful as I could be, but I wondered if it was a mistake for me to be taking care of someone who’s immunosuppressed while I was working at a school.Now that my school has closed, I have completely isolated myself from everyone except for my roommate, whom I rarely see anyway; the woman I work for; and anyone else who comes into her apartment (like her roommate, boyfriend, and other PCAs). I’m not even seeing my girlfriend of three years, and I don’t know when I’ll see her again.When I arrive, I put my stuff in a certain corner of the client's house and wipe down things that I touch, like the doorknobs and my keys, right when I walk in. Not gonna lie—I’m really stressed out about the other caregivers [who share duties caring for my client]. I have no idea if they’re taking any precautions. I just picked up some shifts from someone else who got sick (unrelated to COVID-19), and I imagine I may be doing more of that. The woman I work for has told me that some of her other caregivers aren’t really taking precautions, which is so frustrating because I feel like it undoes my and her efforts. I’m really worried about her and don’t know if it’s even possible to keep the virus away from her, but I’m going to keep going to work, going straight back home, and staying as sanitized as I humanly can.
Photo courtesy of Eleanor Monahan
I have worked for a woman named Jackie, who has a degenerative muscular disorder, since last year as one of several personal care attendants (PCAs) hired by the Department of Social Services. She needs to be extra careful protecting her respiratory system. We’ve been kind of joking about it because we can recognize the clear fear-mongering leading to people hoarding goods, while remaining aware of how social services might be affected. At the same time, it would not be good if Jackie contracted COVID-19, so the PCAs and I wash our hands and sanitize whenever necessary. The nice thing about working a low-paying government job for a nice person is that everyone really cares and wants to support Jackie. We’ll gladly do whatever it takes to keep her healthy and happy.
I don’t take time off work much. If I do, I make sure Jackie has adequate coverage, which means checking with her other employees in advance. There is allegedly a government service that is supposed to provide substitute PCAs in case of an emergency, but Jackie has contacted them in the past, and they have been no help. The current system through In-Home Supportive Services doesn't allow sick pay for in-home caregivers. If I had to self-quarantine, it would not be great. The financial stress it poses is more at the forefront of my mind more than the medical implications are. But we low-income people don’t really have a choice! We keep going to work, hoping for the best. Right now, I guess that just means I have to do everything I can not to have to self-quarantine.
Photo courtesy of Michelle Cole
I work at Namoli’s NY Pizzeria as the front-of-house manager. I interact with customers more than any other employees there. It’s a counter-serve restaurant, so I work the front counter and manage everyone else. I take orders at the POS (point of sale) system and over the phone, ring up customers, run food out to customers, clean the dining area and restrooms, bus dirty dishes, and deal with customers’ complaints.
I live with my 89-year-old great aunt. She’s had pancreatic cancer twice. Contracting COVID-19 might mean hospitalization for her, considering her age and weak immune system. This would also stop her from taking her daily walks, which help keep her healthy both physically and mentally. She would not be able to attend church, which she does four to five times a week. That would most certainly negatively impact her emotional state—that's where most of her socialization takes place, and she's extremely faithful.
Since the news of COVID-19 broke, we’ve washed our hands and used sanitizer much more frequently. To keep her safe, I also use a stylus when operating the POS system at work so I don’t have to touch it directly. After closing, I disinfect the POS system tablets, chairs, tables, and door handles, etc. I wash my hands every time I handle money, credit cards, or dishes.
If I’m too sick to go to work, there aren't PTO or work-from-home options—it's a restaurant. It’s basically, you show up and get paid, or don’t show up and don’t get paid.
Photo courtesy of Yessenia
I work for a respite service/child care inclusion center in Orange County that works with kids with disabilities. One of the children I care for is a three-year-old girl who is immunocompromised. She currently can’t go out to places with big crowds due to the possibility of contracting COVID-19. If she did, it would be very bad for her health.
The staff is making sure not to go to heavily populated public spaces like concerts or amusement parks. If we do go to the store, we sanitize whatever we need to use—the shopping cart at a grocery store, for example, sometimes twice. I wash my hands multiple times throughout the day like I always have but am extra careful now not to touch my face. We could wear face masks if we wanted to, but I personally don’t. However, if necessary, I would go above and beyond my work’s policies due to the fact that it is crucial for the immunocompromised girl I care for not to get sick. It’s a scary possibility.
If I get sick, I don’t get paid when I take time off of work. Though my job would be secure, it would affect my financial situation in that I wouldn’t be getting paid at all in the case I have to practice social isolation or have to self-quarantine. This would, without question, affect my ability to pay my rent and bills.
Photo courtesy of Roslyn Talusan
I'm a freelance writer and anti-rape activist, so I mostly work from home. I currently live with my parents and can’t afford to move out. They are both above retirement age. My mom underwent a stem cell transplant in 2017, so she's also immunocompromised. Up until this past weekend, I actually wasn't concerned about whether or not I was going to contract the virus, but when I thought about my parents, I got anxious. Regardless of whether or not I'd survive COVID-19, I'm not sure they would, and that terrifies me.
I've been going back and forth between Toronto and Austin, TX for the past couple of years to visit my long-term partner. Since I can't afford to move out of my parents' house due to an ongoing human rights case, this is the only way for me to get any space from them. I spend three to five weeks there every other month. I was actually supposed to be headed there to cover SXSW for work. It was cancelled, and my parents expressed concern for their own health, especially given that you can transmit COVID-19 without showing symptoms, so I didn't go. If I lived alone, that would be one thing, but we live in a small house.
Photo courtesy of Dave
I work at a veterinary hospital. We are corporate-owned but managed locally. I work with 10–15 coworkers on any given day, and I am in close quarters with clients five to 10 times a day.
Remote work isn’t an option, so if I’m sick, I need to take sick time. My vacation and sick time come out of the same paid time off. Since it’s early in the year, I could probably get by if I had to self-quarantine for two weeks or more, but since I have only two peers in my office, we would have significantly decreased capacity.
My partner is 29 and has Hashimoto’s disease (autoimmune hypothyroidism). She does not tolerate vaccines, and run-of-the-mill colds can make her too sick to work for weeks. I wish I could take more precautions to keep her safe. We are diligent hand-washers, and we do our best to maintain our health, but our household doesn’t function financially if we aren’t both working. We both serve people who commute inside the Beltway for work, and if I had the opportunity to avoid that for a few weeks, I would. My older kids’ school is closed and my youngest’s preschool is open--but we aren’t sending her. My partner and I are alternating and staggering our work schedules, trying to make some money while we can.
Photo courtesy of Jess
I work for Uber and UberEats, mostly as a delivery driver, traveling all over NJ. When I can, I look for freelance gigs, including taking surveys, doing data entry, and testing products in person.
It's convenient to be able to set my own hours, but time off isn't an option for me financially. I don't get paid time off or sick days. Having to take any sort of leave or isolate myself at home would be disastrous. My mother is on a fixed income and we're barely getting bills paid as it is. With student loan debt, car insurance, medication and deductibles, and my mortgage, it's a lot. I'm really worried about whether or not I'm going to be able to find work and what will happen if my mom or I get sick.
My mother is a 60-year-old stroke survivor who has a heart condition and is diabetic. The CDC said all of those conditions put her in the "higher-risk" group for serious complications, so she's been on edge and bracing for the worst. I have a sibling who is asthmatic and highly susceptible to severe respiratory illnesses, too, so there's a lot of stress all around.
Mom doesn't leave the house anymore except to see her main doctor. We're not really sure what else to do. I'm keeping hand sanitizer and disinfectant wipes in my car, since I can't afford to stop working entirely—Uber is only offering paid time off if I'm diagnosed with COVID-19 or officially required to self-quarantine. I would prefer to stay home or further limit my contact with other people, rather than constantly be in and out of public places and around sick customers. Ideally, I'll find some more data-entry work. In the meantime, I have to keep driving and hope for the best.
Photo courtesy of Paige
I currently work for a married couple in their home. The woman I work for had a stroke about a year ago, and they pay my sister and I to stay in their house at night to get her ready for bed, help her use the restroom throughout the night, and get ready for the day in the morning. My sister and I rotate nights, so one of us is always there.
While I don't interact with a lot of people at work, I'm currently in nursing school. Usually, I'm interacting with hundreds of people at my campus while also doing rotations at hospitals in my area.
It is somewhat difficult for us to take time off of work, given that my sister and I are the only professional caregivers for this couple. My sister and I were able to join our family on a seven-night cruise leaving on February 29, and when we returned to port at Long Beach, we were